COVID-19 CVD Registry
To better understand the COVID-19 pandemic, the American Heart Association has developed a new registry for hospitals and health systems caring for COVID-19 patients.
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As physicians, scientists and researchers worldwide struggle to understand the novel coronavirus (COVID-19) pandemic, the American Heart Association (AHA) is developing a novel registry to aggregate data and aid research on the disease, treatment protocols and risk factors tied to adverse cardiovascular outcomes.
”Having sufficient data is the first step to understanding the impact of COVID-19 on cardiovascular health,“ said John Warner, M.D., FAHA, chair of the quality oversight committee and past volunteer president of the American Heart Association and executive vice president for Health System Affairs at the University of Texas Southwestern Health System in Dallas, Texas. “As a trusted resource for data and research, with an entry point in more than 2,400 U.S. hospitals, the American Heart Association is uniquely positioned to gather data quickly and accurately.”
Several studies have reported COVID-19 patients presenting with or developing heart failure, cardiogenic shock, stroke and lethal arrhythmias secondary to the disease. However, these studies have consistently been limited by the lack of a structured collection of data raising concerns about indication bias for most laboratory testing. Further, several of these studies are single-center descriptive assessments, limiting their generalizability.
The AHA has created a quality improvement registry to better understand the clinical treatment patterns and variations, including the collection of biomarkers, and cardiovascular outcomes in hospitalized COVID-19 patients across the nation. The registry will focus on real-time data from acute care hospitals to better help clinicians and researchers understand and provide feedback to healthcare organizations on how to best treat COVID-19 patients.
The AHA’s COVID-19 CVD Registry powered by Get With The Guidelines® (GWTG) builds on 20 years of successful hospital quality improvement efforts. The no-cost registry will help inform the larger medical community and the aggregated, deidentified data set will be available to researchers through the Association’s Institute for Precision Cardiovascular Medicine in coming months.
Participating Hospitals
- Abbott Northwestern Hospital
- Allegheny General Hospital
- Allegheny Valley Hospital
- Anderson Regional Medical Center
- Ascension St. Joseph Hospital
- AU Medical Center
- Beth Israel Deaconess Medical Center
- Beverly Hospital
- Boston Medical Center
- Bridgeport Hospital
- Brigham and Women's Hospital
- BronxCare Health System
- Buffalo Hospital
- Cambridge Medical Center
- Canonsburg Hospital
- Carrollton Regional Medical Center
- Catholic Health - Mercy Hospital of Buffalo
- Community Hospital, Community Healthcare System
- Cone Health
- Cone Health - Alamance Regional
- Cooper University Health Care
- Cox Medical Center Branson
- District One Hospital
- Durham VA HealthCare System
- Edward Hospital
- Elmhurst Hospital
- Emory Johns Creek Hospital
- Emory Saint Joseph's Hospital
- Emory University Hospital
- Emory University Hospital Midtown
- Eskenazi Health
- Essentia Health
- Essentia Health East. St. Mary's Medical Center
- Essentia Health-St. Joseph's Medical Center
- Essentia Health-St. Mary's Hospital of Superior
- Floyd Medical Center
- Forbes Hospital
- Froedtert Hospital
- Good Samaritan Hospital, a member of WMC Health
- Greenwich Hospital
- Hackensack Meridian Health Jersey Shore University Medical Center
- Harborview Medical Center
- Holy Cross Hospital
- Huntington Hospital
- Inova Alexandria Hospital
- Inova Fair Oaks Hospital
- INOVA Fairfax Hospital
- Inova Loudoun Hospital
- Inova Mount Vernon Hospital
- Jefferson Community Health & Life
- Jefferson Hospital
- Johnston Health
- Kearney Regional Medical Center
- Kenmore Mercy Hospital
- Lake District Hospital
- Lawrence + Memorial Hospital
- Maine Medical Center
- Memorial Hospital at Gulfport
- Memorial Hospital West
- Memorial Regional Hospital
- Mercy Hospital
- Mobile Infirmary
- Morrill County Community Hospital
- Mount St. Mary's Hospital
- Mt. Ascutney Hospital and Health Center
- Nash UNC Health Care
- Nassau University Medical Center
- New Hanover Regional Medical Center
- New Ulm Medical Center
- New-York Presbyterian/Hudson Valley Hospital
- NewYork-Presbyterian Brooklyn Methodist Hospital
- NewYork-Presbyterian Queens
- NewYork-Presbyterian/Columbia University Medical Center
- NewYork-Presbyterian/Lawrence Hospital
- NewYork-Presbyterian/Lower Manhattan Hospital
- NewYork-Presbyterian/The Allen Hospital
- NewYork-Presbyterian/Weill Cornell Medical Center
- Northwestern Memorial Hospital
- NYC Health + Hospitals/Metropolitan
- NYU Langone Hospital - Brooklyn
- NYU Langone Tisch Hospital
- OHSU
- Onslow Memorial Hospital
- Our Lady of the Lake Regional Medical Center
- Owatonna Hospital
- Pardee UNC Health Care
- Parkland Health & Hospital System
- Penn State Hershey Medical Center
- Providence Holy Cross Medical Center
- Providence Portland Medical Center
- Providence Saint John's Health Center
- Providence St. Vincent Medical Center
- Regina Hospital
- River Falls Area Hospital
- Ronald Reagan UCLA Medical Center
- Saint Vincent Health System
- Santa Monica - UCLA Medical Center and Orthopedic and Hospital
- Sisters of Charity Hospital
- Southeast Health
- Southern New Hampshire Medical Center
- St. Catherine Hospital Inc.
- St. Francis Regional Medical Center
- St. Luke's University Hospital
- Stanford Healthcare
- Sturdy Memorial Hospital
- Temple University Hospital
- The Medical Center at Bowling Green
- The University of Kansas Health System
- The University of Vermont Medical Center
- The University of Virginia Health System
- Truman Medical Center
- Tulane University Hospital and Clinic
- UAB Hospital
- UC San Diego Health - UC San Diego Medical Center
- UChicago Medicine
- UI Health
- UNC Hospitals
- UNC Lenoir Health Care
- UNC REX Healthcare
- United Hospital
- University Hospital
- University of California San Francisco (UCSF)
- University of Iowa Hospitals and Clinics
- University of Maryland Shore Medical Center at Easton
- University of Miami Hospital
- University of Michigan Health System
- University of Missouri Health Care
- University of Utah Health Care - Hospital and Clinics
- University of Wisconsin Hospital and Clinics
- UR Medicine Strong Memorial Hospital
- UT Southwestern Medical Center
- UW Medicine | Valley Medical Center
- UWMC - Northwest Campus
- Vidant Medical Center
- Virginia Hospital Center
- Wayne UNC Health Care
- WellStar Atlanta Medical Center
- WellStar Atlanta Medical Center South
- WellStar Cobb Hospital
- WellStar Douglas Hospital
- WellStar Kennestone Regional Hospital
- WellStar North Fulton Hospital
- WellStar Paulding Hospital
- WellStar Spalding Regional Hospital
- WellStar West Georgia Medical Center
- West Penn Allegheny Health System
- Westerly Hospital
- Yale - New Haven Hospital
Data Collection
During the initial release of this registry, sites will begin using a Case Report Form (CRF) for the IRP to collect data. In the near future, we will offer ways to reduce the burden of data collection via an EHR uploader that will be added in Summer 2020 for flexibility in data submission.
Benefits of Participation
In addition to being specifically designed to track all hospitalized COVID-19 patients to get real-time feedback from across the nation, the registry will include the following features:
- Access to national and regional benchmarks
- Ability to use key learnings and data for future pandemic preparedness
- Leverage the registry for powerful rapid research
- Future iterations will include enhanced measures and reports
How to Enroll
In response, the AHA is creating the multicenter registry to collect biomarkers, clinical data and cardiovascular outcomes in COVID-19 patients. The registry will focus on granular data collection from centers that routinely test biomarkers in COVID-19 patients.
To participate in the registry, complete the information request form and our COVID-19 CVD Registry Team members will be in touch. For questions, please contact qualityresearch@heart.org.
Additional resources and guidance for health care professionals on COVID-19 can be found here.
Additional Information and Tools
- COVID-19 CVD Registry: Getting Started, What Your Hospital Needs to Know
- COVID-19 CVD Registry FAQs
- Research Opportunities utilizing data from the AHA COVID-19 CVD Registry
- COVID-19 CVD Registry Workshops and Webinars
- Quality Improvement Program response to COVID-19
- COVID-19 CVD Registry and Measure Factsheet
- COVID-19 CVD Registry CRF
- COVID-19 CVD Registry CRF Serial Lab Tracker
Support from the American Heart Association