Logan J. (Burlington, IA): My name is Logan and I am 6 years old.
I have a mom, a dad, and a big brother named Wyatt who is 10 years old. Looking at me now, you would never know all of the things I have been through these past six years.
When I was only two weeks old, my pediatrician heard a heart murmur when he examined me and requested further testing. I was later diagnosed with multiple Congenital Heart Defects that include D-Transposition of the Great Arteries, Double Outlet Right Ventricle, Ventricular Septal Defect, Pulmonary Stenosis and a Right Aortic Arch.
After my diagnosis, the doctors took me immediately into the Cath Lab to perform a procedure to save my life, since my condition was so serious. Two weeks later, I had my first heart surgery. I have had two more surgeries since then, at 10 months old and 3 years old. The doctors used a donor artery to repair one of my defects, but I will still need more surgeries in the future since the donor artery will not grow with the rest of me.
The doctors and hospital staff have always tried to make my hospital stays as pleasant as they could by providing video games, movies, and a toy room to play in. I discovered that I really love to watch movies…my favorite movie is “Frankenweenie!” It made me happy to be able to do fun kid things while in the hospital so I wouldn’t be cooped up in my bed all day. My mom thinks that these experiences have made me become a very generous person because I am always thinking of what I can give back to others to make them happy too.
I am currently doing well, although I take medications for my heart and my doctors watch me closely so they will know when it is time for my next surgery. Even after that, I will always need to see my cardiologist regularly and may need more procedures in the future to keep my heart in tip-top shape. I do my part to keep my heart healthy by taking my prescribed medications, eating healthy and getting plenty of time to play outside! I started kindergarten this year and I’ve been busy making friends, which is something I have wanted for a very long time.
Every year since I was diagnosed, I have joined my family in local American Heart Association Heart Walks to help raise money for research. It is my hope that other children with sick hearts get the chance to spend as much time as possible outside the hospital to have fun and just be kids.
My family has had the amazing opportunity to be filmed for a documentary on congenital heart defects called “The Heart of the Matter,” produced by TMK Production and the Children’s Heart Foundation. It made its televised debut on PBS stations across the United States last summer. If you have not seen it yet, you can watch a trailer for the movie by visiting www.congenitalheartdocumentary.com.
You can also learn more about my journey and stay updated on my progress by visiting my family’s blog at www.whenlifehandsyouabrokenheart.blogspot.com.
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