My name is Jonah. I am eleven years old and in 5th grade.
Jonah was born with a heart condition known as “Blue Baby” due to blood circulation problems. He also has a rare defect known as Ebstein’s Anomaly.
Johnah's body’s ability to manage his heart condition needed little outside intervention until he developed a condition called Supraventricular Tachycardia (SVT). This causes his heart to beat very, very fast.
Eventually he will need open heart surgery to repair his tricuspid valve, which is still leaking badly.
Looking at Jonah, you would never know that he has a special heart. Not only is it big in size, but it is filled with love!
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