Meet Zoe in Carol Stream Illinois
Zoë Fiona-Grace Reyes was born on Super Bowl Sunday, February 5th, 2012. She was diagnosed with Heterotaxy Syndrome.
Heterotaxy is rare, affecting four out of a million live births, and each case is different from the next.
People born with Heterotaxy Syndrome usually have an abnormal arrangement of the organs and in most cases, complex congenital heart defects are present. In Zoë’s case, she was born with an Interrupted IVC, Double SVC, ASD, VSD, Duodenal Atresia (intestinal blockage) and she was polysplenic (she had multiple spleens, none of which were functioning).
Also, her heart is located in the middle of her chest, instead of slightly to the left like most. Before they could fix her heart, she had to undergo surgery at five days old to correct her intestinal blockage.
She spent 32 days in the NICU at Ann & Robert H. Lurie’s Children’s Hospital. She had open heart surgery to correct her VSD and ASD on September 25, 2012.
In addition to this, she’s endured other interventions to correct her complicated condition, including wearing a cranial band to correct her head shape and working with a physical therapist.
Zoë’s family is grateful that she has benefitted from the research funded by the American Heart Association.
You can follow her continuing journey at http://babyzoesjourney.blogspot.com.
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