Meet Lindsey from Bolingbrook Illinois

Updated:Mar 15,2013

Lindsey in Bolingbrook IllinoisMy name is Lindsey and I’m in 6th grade. 

I was born with a heart defect called Double Outlet Right Ventricle with Transposition of the Great Vessels.  This means the left side of my heart is smaller than normal and the blood flows mostly in and out of the right side. Also, my Aorta and Pulmonary Artery are reversed. 

I had two open heart surgeries when I was a baby so the doctor could fix this problem.  I had my first surgery when I was just 6 months old on Valentine’s Day, 2001. This was the first of a two part surgery to fix my heart.

While I was having my surgery, my friends and their classmates were doing a Jump Rope for Heart marathon to help raise money for the American Heart Association.  They jumped in my honor, and I believe this helped me through my surgery, because everyone was pulling for me.

In 2003, when I was 2 ½, I had another open heart surgery to finish the repair of my heart.  This time, there were complications. I had to go back for a cardiac cauterization a week later to fix a leaking blood vessel near my liver.  I did not recover well from that procedure and was in the hospital for 5 weeks.  Luckily, I made a full recovery.

I am 12 years old now and I have not had any heart problems for the past 10 years.  I take medicine every night and see my cardiologist every 6 months to make sure my heart is still working the way it should.   I can play sports, although I have to be careful I don’t overdo it, especially in the summer when it’s hot and humid outside. 

My cousin has been doing Jump Rope for Heart at her school in my honor for the past few years and she has been the top fundraiser for this event.  It is cool that she does this in my honor.  This is the first year I got to participate in Hoops for Heart at St. Scholastica School, and I became the “Ambassador” for my school for this event. It really made me feel special.  Now, my cousin and I are raising money together for this great cause. I’m also learning more about how my heart works by doing a research paper on the circulatory system.  It’s kind of fun having a special heart!