My name is Jaxon. I am 7 years old and in 2nd grade.
When I was less than 24 hours old, a nurse thought my color seemed a little “off.” She had some blood work drawn and from that point on, our lives were forever changed.
I was flown by helicopter to Cardinal Glennon Hospital, where my parents received the news that I was born with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS.
One week later, I was wheeled into surgery. My parents were eager to know what the future held for me. Would I be able to be an active child and participate in activities, or would I be sick all the time and have to be cautious about everything? The problem was, no doctor could answer these questions. All they were able to tell my parents for certain was that after this first surgery, I would have at least two more heart surgeries.
This three-step surgery process has only been performed for around 20 years, so they could not offer a long term outlook.
Prior to the surgeries being performed, the only option for kids like me was a heart transplant. My parents are so thankful that doctors can now do these surgeries.
I had my second surgery at 4 months old and my third surgery at 3 years old. Each surgery was another necessary hurdle, so I could have the best quality of life possible. It wasn’t easy, but we have all made it through.
Today, I am very active and lively, and I love my life. I enjoy playing Little League baseball and Peewee basketball. I like singing at church and I love to play the drums! My parents feel blessed that we have been able to overcome my challenges so I could be in their lives.
RETURN TO KIDS WITH HEART