Carlie Crain's Survivor Story

Carlie's Story

Carlie is a student, softball player, daughter, sister, friend and congenital heart defect survivor.

Congenital heart defects are the most common type of birth defects, affecting 1 in 110 babies. Even with these stats, when her Mom was told at her 20-week ultrasound that her daughter would be born with CHD, it was a shock. By the time Carlie was 3 ½, she had endured three open heart surgeries.

Today, Carlie’s heart has to pump twice as hard as the average persons, she tires easily and suffers from migraines. However, she doesn’t let this distract her from her goal of working in the maternal fetal medicine field. As a student studying radiography, Carlie plans to one day be there to help guide families through the ultrasound portion of pregnancy.

At the Crain household, “normal” is sometimes defined as having a heart scar and six month check-ups. Carlie’s younger brother, Case, was also born with a congenital heart defect; he often questions why their sister Camden doesn’t have these same “normals” as he and Carlie. They don’t know what the future holds, it may be a heart transplant or more surgeries, but they know they face it together as a family.